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The Michael J. Fox Foundation Parkinson's Podcast
Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.
- 258 - Ask Us Anything About Deep Brain Stimulation Surgery Day
Each person living with Parkinson’s disease (PD) will have a unique journey with their treatments, including the decision to have deep brain stimulation (DBS), which is a surgical procedure to treat Parkinson’s motor symptoms. While DBS isn’t suitable for everyone, it can be helpful in the right person, and it’s a complex, lifelong choice. And although the experience goes far beyond surgery day, brain surgery often looms large in people’s minds as they are contemplating DBS. In this episode, our expert panelists tackle community-sourced questions on DBS surgery day: what to wear, how loved ones can support, what it feels like to be awake during brain surgery and more. Tune in to hear from two people who have had DBS, a neurosurgeon and a movement disorder specialist and learn more about the realities of surgery day.
For more information on deep brain stimulation, download our newly updated, comprehensive guide or check out our webinar at michaeljfox.org.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community: https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Marker’s Initiative, also known as PPMI, is recruiting volunteers. People from all backgrounds with and without Parkinson’s can help move research forward. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 13 Nov 2024 - 40min - 257 - Hitting Stride: Research Advances on Walking with Parkinson’s (Webinar Audio)
Troubles with gait – slow walking, shuffling steps and foot dragging and more – can be symptoms of Parkinson’s. In audio from this Third Thursdays Webinar, our experts explore the robust research efforts underway to understand and treat gait issues, from physical rehab interventions to deep brain stimulation modifications to wearable robots designed to smooth gait.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Marker’s Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 23 Oct 2024 - 48min - 256 - Perspectives on Navigating Racial Bias and Stigma in Parkinson's Disease
In this podcast, four people from different backgrounds have a candid conversation on race, stigma and Parkinson’s. They share their experiences trying to find culturally competent medical professionals, overcoming the barriers to research participation, and communicating with their communities about their diagnosis. And they offer tips and advice on finding empowerment through education and advocacy.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community: https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Marker’s Initiative, also known as PPMI, is recruiting volunteers. People from all backgrounds with and without Parkinson's can help move research forward. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 09 Oct 2024 - 44min - 255 - A Conversation on Parkinson’s-Related Hallucinations and Delusions (Webinar Audio)
Parkinson’s disease brings with it many potential symptoms, including hallucinations (seeing things that are not there) and delusions (believing things that are not true). Not everyone will experience these symptoms and not everyone who does will find them bothersome, but it can be a source of uncertainty and concern for people living with the disease. In audio from this Third Thursdays Webinar, our expert panel discusses navigating life with these symptoms and medication and non-medication strategies to manage them.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Marker’s Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 25 Sep 2024 - 54min - 254 - Your Daily Dose: Managing Parkinson’s Medications (Webinar Audio)
Finding the right Parkinson’s treatment plan can be a trial-and-error process. The kind of medication, the dosage, the timing and lifestyle factors are all important pieces of the puzzle. In audio from this Third Thursdays Webinar, our expert panel made up of people living with Parkinson’s disease (PD), a movement disorder specialist and a researcher discuss different medication options, practical tips for finding what works best for you and the latest research on emerging treatments.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 21 Aug 2024 - 55min - 253 - Breathing Through: Mindfulness as a Parkinson's Treatment Tool
Research shows mindfulness and meditation can improve some Parkinson’s (PD) symptoms and help people live a better life with the disease, but it can be tricky to put into practice. In this podcast, you’ll hear from people whose lives have been touched by PD and who use mindfulness to reduce symptoms and stress, and from a researcher who is studying how mind-body strategies can be used to treat Parkinson’s. Tune in for practical tips, advice and a guided meditation you can try at home.
You can find links to the resources mentioned in the episode on our website: michaeljfox.org/podcast/breathing-through-mindfulness-parkinsons-treatment-tool
You can also download our free guide on exercise and Parkinson’s disease, which includes tips for incorporating meditation into your daily routine at michaeljfox.org/exerciseguide
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 14 Aug 2024 - 45min - 252 - Considering Deep Brain Stimulation: What to Know and Expect (Webinar Audio)
The decision-making process around deep brain stimulation (DBS) to treat Parkinson’s motor symptoms can be a complex and emotional journey. People often have questions about when – and whether – to have the procedure and what the experience is like, from the months of evaluation pre-surgery to surgery day to life with the device. In audio from this Third Thursdays Webinar, our panel of people living with Parkinson’s disease (PD) and a movement disorder specialist share their DBS stories and answer audience questions about their choices and experiences.
Learn more about deep brain stimulation and download our free guide on our website: https://bit.ly/4cTOT52
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community.
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 24 Jul 2024 - 56min - 251 - Building on the Biomarker Breakthrough: What We’re Working on Now
Just over a year ago, there was a major breakthrough in Parkinson’s disease (PD) research – a tool that could detect abnormal alpha-synuclein protein in the spinal fluid of people living with PD even before onset of symptoms. This discovery is already impacting the ways scientists conduct and think about Parkinson’s research. Tune into this episode of our award-winning “Parkinson’s Science POV” series to learn how researchers are using the test to better understand disease biology and what the future holds.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 10 Jul 2024 - 34min - 250 - You Want to Volunteer for Parkinson’s Research: Now What? (Webinar Audio)
You might be interested in stepping forward for science to play a role in the next breakthrough in Parkinson’s research, but still have questions about how to actually participate. How do you pick the right study for you? How do you balance your life logistics and your medical care considerations? What rights do you have when you participate in a study? In audio from this Third Thursdays Webinar, our panel of people living with Parkinson’s and research experts discuss the practicalities and benefits of volunteering for research.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 26 Jun 2024 - 58min - 249 - When Parkinson’s Hurts: Treatments for Managing Pain (Webinar Audio)
Many people living with Parkinson’s disease (PD) experience pain as a non-motor symptom. Pain can arise from stiff muscles, dystonia, nerve pain and even the disease progression itself. It’s a symptom that some find difficult to talk about, but there are options for people to find relief. In audio from this Third Thursdays webinar, listen to our expert panel of people living with PD, movement disorder specialists, and an integrative pain specialist discuss pain and Parkinson’s – why it happens, treatments to reduce it, and practical tips you can start incorporating today.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 29 May 2024 - 57min - 248 - What I Wish I Had Known at Diagnosis
In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what they’ve lost and what they’ve gained – and you’ll be surprised to hear how, for some, what they’ve gained is more than what they lost.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
If you or a loved one was recently diagnosed and you’re wondering where to start, visit https://www.michaeljfox.org/newlydiagnosed to find helpful resources, including an educational guide, support groups and videos.
Whether you’ve been newly diagnosed or have been living with Parkinson’s for many years, The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 15 May 2024 - 36min - 247 - Real Talk from Women Living with Parkinson’s
In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health care team and how they empower other women through awareness and activism.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Connect with other women who share your experiences with Parkinson’s. The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 08 May 2024 - 44min - 246 - Let’s Talk Taboos: Hard-To-Discuss Parkinson’s Symptoms (Webinar Audio)
Living with Parkinson’s comes with a variety of symptoms, some of which can be unexpected, and frankly, embarrassing. Drooling, bladder issues and sexual dysfunction are hard to talk about, even with loved ones or your doctor – and can affect your self-image, your intimate relationships or the way you move through the world. In audio from this Third Thursdays webinar, listen to our expert panel of people living with Parkinson’s, a care partner and a movement disorder specialist discuss Parkinson’s taboo topics and ways that you can navigate hard conversations and embarrassment.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you’ve been newly diagnosed or have been living with Parkinson’s for many years, The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 24 Apr 2024 - 51min - 245 - Everyday Exposures to Parkinson’s: Environmental Connections to the Disease (Webinar Audio)
The biology behind what causes Parkinson’s is complex, with only about a quarter of cases with clear genetic drivers. The environment – where you live, the air you breathe, the food you eat, the world around you – plays a key role in PD. Emerging research is showing environmental exposures to things like pesticides and pollution may interact with a person’s genetics and contribute to the disease. And there’s a myriad of other factors still being investigated, from the forces that drive your access to neighborhoods with clean air and water, good doctors and healthy living opportunities to psychosocial factors like stress and discrimination. In audio from this Third Thursdays Webinar, listen to our expert panel discuss the latest research and ways you can get involved to end preventable exposures and advocate for Parkinson’s policy.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 27 Mar 2024 - 59min - 244 - Therapies for Tomorrow: How Better Clinical Trial Design Leads to Better Treatments (Webinar Audio)
The drug development pipeline is key to bringing new therapies to people with Parkinson’s disease (PD). With major breakthroughs in research in the past year, including a new biomarker for PD, The Michael J. Fox Foundation’s Parkinson’s Progression Markers Initiative (PPMI) study and other initiatives can be leveraged to create better designed trials. This audio from our Third Thursdays Webinar features a conversation about all the ways clinical trial design is changing, and why leaders in the space believe those changes will lead to better treatments. The webinar includes contributions from a person with PD, a researcher and an industry leader.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 28 Feb 2024 - 58min - 243 - Dating and New Relationships after a Parkinson’s Diagnosis
Dating and beginning new relationships with Parkinson’s involve distinct challenges, joys and fears. In this frank and funny podcast, our experts discuss how they face considerations like building and maintaining confidence, disease disclosure, and the importance of self-knowledge and self-care in new relationships. They remind us all that no matter what we’re facing, dating and finding love can be fun and fulfilling.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you’ve been newly diagnosed or have been living with Parkinson’s for many years, The Michael J. Fox Foundation’s Parkinson’s Buddy Network is a free, online platform that helps you find new connections, access educational resources and engage in important dialogue. Join our community today at parkinsonsbuddynetwork.org.
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 14 Feb 2024 - 33min - 242 - New Year, New Moves! Explore Exercise for Life with Parkinson’s (Webinar Audio)
We know exercise is important for people with Parkinson’s. Once you’ve decided to move more, what next? In this audio from our Third Thursdays Webinar, our experts discuss strategies for making exercise a meaningful part of your life. They present ways to make time for exercise and to make the most of it, including being aware of different types, frequencies and intensities. This discussion will help you find a way to get moving and stay motivated.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Join a Foundation-hosted run/walk event. Or register for the Unity Walk. Every mile moves us one step closer to a cure for Parkinson's. Learn more at michaeljfox.org.
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 24 Jan 2024 - 59min - 241 - How MJFF “De-Risks” PD Drug Development Pipeline
One key pillar of The Michael J. Fox Foundation’s research strategy is a focus on “de-risking" potential treatments for Parkinson’s disease. This episode of our award-winning “Parkinson’s Science POV” series explains how lowering the risk associated with developing new therapies leads to a more robust pipeline of treatments. The episode details several recent successes of the strategy.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Join a study today to help speed progress toward better treatments and a cure for Parkinson’s disease. To search for studies in your area, visit Fox Trial Finder at foxtrialfinder.org.
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 17 Jan 2024 - 33min - 240 - Tools for Diagnosing and Visualizing Parkinson’s Disease (Webinar Audio)
Doctors have been using DaTscan brain imaging as a tool to help diagnose the Parkinson’s disease (PD) for more than a decade, but even people who know a lot about the disease often still have questions about its role — and the role of other imaging tools — in diagnosis and care. What’s a DaTscan, and how does it relate to PET, SPECT and MRI? When is a DaTscan or other brain imaging tool used in PD? Are there any risks?
In this audio from our Third Thursdays Webinar, experts and people with PD offer listeners an impromptu course in Brain Imaging 101. You’ll learn to differentiate the different types of imaging used to visualize the brain and how they are used in PD research and care. You’ll also learn the latest in efforts to visualize alpha-synuclein, the protein that misfolds and clumps in Parkinson’s, and what its selective imaging in the living brain will mean for PD clinical trials and care.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 03 Jan 2024 - 55min - 239 - Having Happy Holidays with Parkinson’s
The holidays can be a time of joyful celebration with those we love. They may also come with the stress of travel, disruptions to your regular routine or even loneliness. For those living with Parkinson’s disease (PD), or those taking care of someone they love with the disease, these feelings can be intensified. This podcast offers tips to people living with PD, as well as their care partners, friends and family, for how to prepare — mind, body and suitcase — to make your holidays happy.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 20 Dec 2023 - 37min - 238 - A Year Like No Other in Parkinson’s Research: 2023 in Review (Webinar Audio)
In a year of remarkable progress for the Parkinson’s field, we’re entering a new era for better understanding the biology of the disease, with the identification of a breakthrough biomarker accelerating new therapeutics through the clinical pipeline and legislators on Capitol Hill moving toward legislation that unites the federal government on a mission to treat, prevent and cure Parkinson’s disease.
What does this progress mean for researchers studying Parkinson’s and for those living with the disease? And what will come next?
Tune in as scientists and staff from The Michael J. Fox Foundation (MJFF) answer these questions and share insights in our latest Third Thursdays Webinar.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Join a study today to help speed progress toward better treatments and a cure for Parkinson’s disease. To search for studies in your area, visit Fox Trial Finder at foxtrialfinder.org.
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 29 Nov 2023 - 57min - 237 - Genetics Discovery Underscores Importance of Diversity in Parkinson’s Disease Research
In a groundbreaking discovery earlier this year, a global consortium founda new variant in the GBA gene that is associated with a higher risk of Parkinson’s disease (PD) for people of African ancestry. The finding marks the first African ancestry-specific genetic risk factor for Parkinson’s disease. In this podcast, researchers share the human stories behind the discovery, which underscores the importance of international collaboration and the participation of underrepresented communities in research.
Themes covered in this discussion:
(02:05) – Breaking down the genetic discovery and why it’s important for PD research (05:27) – More on the genetic samples that resulted in this discovery (06:53) –Why the GBA1 gene is of interest and its connection to PD (11:13) – How the Global Parkinson’s Genetics Program (GP2) maintains privacy and confidentiality of data from study participants (13:15) – How people should think about genetics as a risk factor for PD (14:55) – Capacity building and building community trust (19:57) –Why this discovery takes us closer to finding better treatments and a cure for PD (21:51) – Story behind accidental discovery of GBA1 variant (22:50) – Background on GP2 and excitement on the GBA1 variant discovery (33:17) – Ethnicity and health risk factors and other determinants of health (35:03) – Importance of diversity, equity and inclusion in science and to The Michael J. Fox Foundation’s mission (36:52) – Research in PD historically focused on people of Northern European ancestry (38:09) –Why people from underrepresented groups need to lead these studies (39:30) – Importance of including underrepresented populations across the research pipeline (40:18) –Why research participation is important and how you can get involvedLike our podcasts? Please consider leaving a rating or review and sharing the series with your network.https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 15 Nov 2023 - 43min - 236 - Ask Us Anything: Answers to Your Questions about Gut Health and Parkinson’s (Webinar Audio)
People with Parkinson’s disease (PD) have lots of questions about probiotics, prebiotics, laxatives and fiber. That’s because constipation and bloating are some of the more bothersome but less talked about symptoms of PD. In this audio from our Third Thursdays Webinar, experts and people with PD discuss effective ways for managing constipation and other gut-related symptoms. You’ll also learn about emerging treatments for constipation, the gut-brain connection and why the gut is linked to Parkinson’s.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 01 Nov 2023 - 59min - 235 - Finding Your Way: Working through Emotions in Early Years with Parkinson’s (Webinar Replay)
Shock, doubt, anxiety — a diagnosis of Parkinson’s can trigger these and many other difficult emotions. This replay of audio from our Third Thursdays Webinar features a conversation among people with Parkinson’s about how they processed the emotional aftermath and navigated the early years following their diagnosis. We also hear from a psychologist who specializes in Parkinson’s about what she’s learned about how people deal with this life-changing diagnosis and ways to manage the emotions in a positive way.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.org/podcast-ppmi.
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 27 Sep 2023 - 58min - 234 - Too Much or Not Enough: Dyskinesia and “Off” Time in Parkinson's (Webinar Replay)
In this replay of audio from our Third Thursdays Webinar, Michael J. Fox Foundation Patient Council member Larry Gifford leads a discussion on common Parkinson’s issues — dyskinesia and "off" time — and how to treat them. Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0 Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.com/podcast-ppmi.
Wed, 23 Aug 2023 - 58min - 233 - Podcast: What Comes Next? Living with Parkinson’s Years after Diagnosis (Webinar Replay)
There are social, emotional and physical changes you may notice after living with Parkinson’s for some time. In this episode replay, experts discuss tips for managing symptoms, finding support and living well with Parkinson’s disease.
Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 21 Dec 2022 - 1h 00min - 232 - Podcast: Deep Brain Stimulation: Is It Right for Me or My Loved One? (Webinar Replay)
Many people and families with Parkinson’s wonder if deep brain stimulation (DBS) — a surgical procedure for Parkinson’s — is a possible treatment option for them. In this episode replay, experts discuss who should consider DBS; potential benefits and risks; and the latest advancements in DBS research.
If you’ve recently been diagnosed with Parkinson’s, you can play a critical role in our landmark Parkinson’s Progression Markers Initiative (PPMI) study. Get started at michaeljfox.org/podcast-newlydiagnosed
Anyone over age 18 in the U.S. — with Parkinson’s, at any stage, or without — can join the online part of PPMI at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 26 Oct 2022 - 1h 01min - 231 - Podcast: New to Parkinson’s? Steps to Take Today (Webinar Replay)
Navigating a Parkinson’s diagnosis can be challenging, but you’re not alone. In this episode replay, experts share practical tips for managing the early years of Parkinson’s disease.
If you’ve recently been diagnosed with Parkinson’s, you can play a critical role in our landmark Parkinson’s Progression Markers Initiative (PPMI) study. Connect with the study team today at michaeljfox.org/podcast-ppmi-sites.
Anyone over age 18 in the U.S. — with Parkinson’s, at any stage, or without — can join the online part of PPMI. Get started at michaeljfox.org/podcast-ppmi.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 27 Apr 2022 - 1h 02min - 229 - Reporting on Stem Cells for Parkinson’s
Stem cells have grabbed headlines for decades. Now, at last, they are starting to deliver on their therapeutic promise, with multiple stem cell therapies in clinical trials for Parkinson’s disease. This episode of our award-winning “Parkinson’s Science POV” series brings us up to date on these trials, including how scientists are using stem cells to replace dopamine, the chemical that’s lost in Parkinson's disease. Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0 Join a study today to help speed progress toward better treatments and a cure for Parkinson’s disease. To search for studies in your area, visit Fox Trial Finder at foxtrialfinder.org. Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.com/podcast-ppmi.
Wed, 16 Aug 2023 - 38min - 228 - Genetics and Parkinson’s: Understanding the Role of Gene Therapy in a Cure (Webinar Audio)
What do you know about gene therapy and its potential for treating Parkinson’s? In this audio from our Third Thursdays Webinar, you’ll learn what exactly gene therapy is and how it works, who gene therapy might work for and the role of genetic testing. You’ll also get a status report on investigations into gene therapy for Parkinson’s. Panelists include experts in the field as well as a person with Parkinson’s and her care partner.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.com/podcast-ppmiWed, 26 Jul 2023 - 59min - 227 - Digestible Tips: Your Gut and Parkinson’s
How’s this for a dinnertime conversation starter… did you know that what happens in your gut can have an impact on your brain health? Some experts even call the gut “the second brain” because of its huge community of microbes and large nerve network that links the gut to brain disease, like Parkinson’s.
Join our panel of experts who cover the latest research on this link between gut and brain health. And tune in as they discuss common gut symptoms of Parkinson’s and what you can do to manage them.
For more on this topic, visit michaeljfox.org/guthealth.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 12 Jul 2023 - 49min - 226 - From Low Blood Pressure to Bladder Problems: A Look at Lesser-Known Parkinson’s Symptoms (Webinar Replay)
Many people with Parkinson’s experience autonomic symptoms, like bladder problems, low blood pressure and constipation that can be hard to talk about. In this audio from our Third Thursdays Webinar replay, experts and patients open a dialogue on these issues and share ways to treat them.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.com/podcast-ppmiWed, 21 Jun 2023 - 1h 00min - 225 - Ask MJFF Anything: Your Questions for Our Scientists
In the latest installment of our award-winning “Parkinson’s Science POV” series, MJFF’s Maggie Kuhl sits down with Mark Frasier and Brian Fiske, Chief Science Officers at MJFF, in an “Ask MJFF Anything” edition of our podcast. These experts cover a variety of questions from our community about Parkinson’s disease (PD) therapies and treatments, the recent biomarker breakthrough and more. Get answers on topics ranging from how exercise helps improve balance, to what the new biomarker breakthrough means for the Parkinson’s community.
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. Find out more at michaeljfox.com/podcast-ppmiWed, 14 Jun 2023 - 49min - 224 - Get Moving: Exercising for a Healthy Brain (Webinar Audio)
Have you ever wondered what’s the best exercise for your brain? Listen as our expert panel breaks down approachable tips to add more movement into your day-to-day, Parkinson’s-friendly exercises to try right now and the science behind the benefits of working up a sweat.
Join hundreds of Parkinson’s community members June 17 weekend for our annual Virtual Run/Walk. Register and learn more at www.michaeljfox.org/runwalk
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 31 May 2023 - 1h 01min - 223 - If Not Us, Who? Humans behind a Biomarker Breakthrough
Faith and science are not often discussed together, but science requires a leap of faith. A few years ago, MJFF staff scientists, Samantha Hutten, PhD and Katie Kopil, PhD never would have guessed that a leap of faith and a cold call to a researcher in Texas would lead to a tool that, for the first time, can detect Parkinson’s in people who have not yet shown symptoms. With the help of the countless community members taking part in the PPMI study, these researchers found a biomarker for Parkinson’s. Hear all about the journey to the breakthrough and what it means to the Parkinson’s community in this rich discussion with some of the humans behind it.
Whether you have Parkinson’s or not, you can help move research forward. Join the study that’s changing everything. michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 24 May 2023 - 32min - 222 - Major Research Breakthrough: A New Biomarker for Parkinson's (Webinar Audio)
In April, The Michael J. Fox Foundation (MJFF) announced a major biomarker breakthrough, opening a new chapter for Parkinson’s research — with the promise of better drug development and care for all people and families living with the disease. With the new test, validated by MJFF’s Parkinson’s Progression Markers Initiative (PPMI), researchers can objectively define and monitor this pathology for the first time in the living body. Experts explain the promise this research holds for all people living with Parkinson’s.
PPMI is enrolling people with and without Parkinson's disease. Join the study that's changing everything. michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 26 Apr 2023 - 59min - 221 - What You Need to Know about Sleep, Aging and Parkinson's
Did you know that RBD – REM sleep behavior disorder, or acting out dreams -- can be an early indicator of Parkinson’s? Many people develop sleep issues as they age — with and without PD.
Join host Larry Gifford in a rich discussion with expert Stephen Joza, MD, PhD; Allen Dance, recently diagnosed with RBD; and Richie Rothenberg, patient advisor to The Michael J. Fox Foundation (MJFF), with his care partner Julie Merson, on why sleep is important, strategies to tackle sleep problems and the importance of participating in research studies like MJFF’s Parkinson’s Progression Markers Initiative (PPMI).
The PPMI study is learning more about the connection between RBD and Parkinson’s to understand who gets the disease, who doesn’t and why. And those insights could lead to better treatments and cures. For more information on RBD, visit michaeljfox.org/dreams.
More about The Michael J. Fox Foundation Parkinson’s Podcast:
Scientific, medical and patient experts on Parkinson’s discuss practical tips on living well with the disease, current research headlines and more in this award-winning podcast.
Get involved today, and access free resources at michaeljfox.org.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 15 Mar 2023 - 41min - 220 - One Step at a Time: Managing Gait and Balance Issues in Parkinson's (Webinar Audio)
From freezing to shuffling and everything in between, gait and balance issues can impact people with Parkinson’s at all stages of their journey. In this episode, listen as experts discuss emerging research and tips for people and care partners to improve mobility, prevent falls and maintain independence day to day.
The Michael J. Fox Foundation’s landmark research study is focused on learning more about how Parkinson’s starts, changes over time and how to stop it. Study volunteers are urgently needed. Anyone over age 18 can enroll. Join the study that's changing everything at michaeljfox.org/podcast-ppmi
More about The Michael J. Fox Foundation Parkinson’s Podcast:
Scientific, medical and patient experts on Parkinson’s discuss practical tips on living well with the disease, current research headlines and more in this award-winning podcast.
Get involved today, and access free resources at michaeljfox.org.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 22 Feb 2023 - 58min - 219 - Food for Thought: Answering Your Questions on Diet, Brain Health and Parkinson's
For many, the word “diet” has negative associations: cutting out the foods you love, not enjoying what you eat or following strict rules about what you can or can’t eat. But diet is a way of life. And you can still boost brain health or manage Parkinson’s with your favorite family recipes, dinner out with friends and even the salty or sweet snacks you crave most. The Michael J. Fox Foundation’s Rachel Dolhun, MD, fellowship-trained movement disorder specialist, board-certified neurologist and lifestyle medicine physician, sits down with expert dietitians Paula Montagna and Vanessa Rissetto, and Parkinson’s community members, Denise and Bernard Coley, to answer your most-asked questions on healthy eating and nutrition.
Want to learn more on this topic? Download our new guide on diet and brain health at michaeljfox.org/dietguide.
And for more easy-to-make recipes from today’s episode, visit michaeljfox.org.
The Michael J. Fox Foundation’s landmark research study is focused on learning more about how Parkinson’s starts, changes over time and how to stop it. Study volunteers are urgently needed. Anyone over age 18 can enroll. Join the study that's changing everything at michaeljfox.org/podcast-ppmi
More about The Michael J. Fox Foundation Parkinson’s Podcast:
Scientific, medical and patient experts on Parkinson’s discuss practical tips on living well with the disease, current research headlines and more in this award-winning podcast.
Get involved today, and access free resources at michaeljfox.org.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 08 Feb 2023 - 1h 02min - 218 - Eating to Boost Brain Health and Ease Symptoms (Webinar Audio)
What foods are best for you? Whether you have Parkinson’s disease, or are concerned you might develop it, food and nutrition play a critical role in brain health. Our expert panel of Parkinson’s physicians and nutritionists shares effective ways to manage symptoms through nutrition and mobility modifications to make food preparation and eating easier.
Learn more about diet and nutrition in our new free guide, available at michaeljfox.org/guides.
Our landmark research study, the Parkinson’s Progression Markers Initiative, is exploring the connection between smell loss and brain health. If you’re age 60 and up without Parkinson’s in the U.S. or Canada, request a free scratch-and-sniff test at mysmelltest.org/request.
More about The Michael J. Fox Foundation Parkinson’s Podcast:
Scientific, medical and patient experts on Parkinson’s discuss practical tips on living well with the disease, current research headlines and more in this award-winning podcast.
Get involved today, and access free resources at michaeljfox.org.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 25 Jan 2023 - 1h 02min - 217 - Navegando el Viaje Emocional de un Diagnóstico de Parkinson (seminario virtual: grabación de audio)
Un diagnóstico de Parkinson puede traer muchas emociones diferentes: negación, ira, tristeza, frustración. Es importante saber que no importa qué emociones sientas, no estás solo. Escuche a los expertos, personas con Parkinson y un especialista en trastornos del movimiento, hablar sobre cómo navegar por las emociones y el viaje viviendo con la enfermedad. Este episodio es de nuestro último seminario virtual en español y ofrece reflexiones personales sobre los pasos que las personas y familiares con Parkinson pueden tomar para aceptar y vivir bien con la enfermedad.
Si prefiere escuchar sobre la marcha, suscríbase a nuestro podcast de Parkinson de la Fundación Michael J. Fox en iTunes o a través de cualquier aplicación de podcast en su celular inteligente o tableta. Si le gustó este podcast, compártelo con una amistad o deja una reseña en iTunes. Ayuda a oyentes como usted a encontrar y apoyar nuestra misión.Fri, 16 Dec 2022 - 57min - 216 - 2022 in Review: Progress Toward Better Treatments and Prevention (Webinar Audio)
The Parkinson’s community often asks, “What new treatments are in the pipeline?” In this episode, experts discuss the latest approaches in treating the spectrum of Parkinson’s, from early diagnosis to advancing disease. They also highlight the latest tools to predict and measure Parkinson’s and critical steps toward prevention.
Recently diagnosed with Parkinson’s? You can play a critical role in the Parkinson’s Progression Markers Initiative (PPMI) study. Learn more at michaeljfox.org/podcast-newlydiagnosed
Anyone over age 18 in the U.S. — with or without Parkinson’s, at any stage — can join the online part of PPMI. Get started at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 30 Nov 2022 - 1h 00min - 215 - From Diagnosis On: My First Days with Parkinson’s
A Parkinson’s diagnosis can bring many different emotions — denial, anger, sadness, frustration. It’s important to know that no matter what emotions you feel, you’re not alone. Listen as people with Parkinson’s and their loved ones discuss how they’ve navigated emotions in the early years with Parkinson’s disease. This podcast episode offers personal reflections on steps people can take toward acceptance and real-world advice for those recently diagnosed and beyond.
If you’ve been diagnosed with Parkinson’s in the past two years, you can play a critical role in the Parkinson’s Progression Markers Initiative (PPMI) study. Learn more at michaeljfox.org/podcast-newlydiagnosed
The online part of PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 28 Sep 2022 - 46min - 214 - Podcast: Public Policy and You: How to Become a Parkinson’s Advocate (Webinar Audio)
Public policy plays an important role in speeding a cure for Parkinson’s. In this episode, experts discuss ways to become a Parkinson’s advocate and how you can reach out to your elected officials to help influence change on behalf of the Parkinson’s community. Experts also highlight the first-ever legislation solely dedicated to ending Parkinson’s disease.
Ask your Representative to support The National Plan to End Parkinson’s Act at michaeljfox.org/national-plan
Recently diagnosed with Parkinson’s? You can play a critical role in the Parkinson’s Progression Markers Initiative (PPMI) study. Learn more at michaeljfox.org/podcast-newlydiagnosed
The online part of PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 31 Aug 2022 - 1h 00min - 213 - Podcast: Virtual Checkup: How Telehealth Brings Parkinson's Care to You (Webinar Audio)
Many people with Parkinson’s consider telehealth a useful tool for getting care. But for some, the technology or visit may be tough to navigate. In this episode, experts discuss how to make the most of a virtual visit with a doctor and the impact of telehealth on research and care.
Recently diagnosed with Parkinson’s? You can play a critical role in the Parkinson’s Progression Markers Initiative (PPMI) study. Connect with the PPMI team at michaeljfox.org/podcast-ppmi-sites
The online part of PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 27 Jul 2022 - 59min - 212 - Making Strides: Treatments and Technology for Walking Problems in Parkinson's
Walking is a complex skill. So, shares Catherine Kopil, PhD, in the third episode of our “Parkinson’s Science POV” podcast series.
Gait requires a symphony of connections between the brain and body, which makes it one of the hardest Parkinson’s symptoms to treat. Kopil, MJFF Senior Vice President of Clinical Research, and Chief Scientific Officer Mark Frasier, PhD, discuss progress toward understanding the neuroscience of gait challenges, such as walking, balancing, shuffling steps and freezing. They talk about treatments in testing and the use of digital technology to measure and predict gait changes in people with PD.
Much of this work is happening in our landmark Parkinson’s Progression Markers Initiative (PPMI) study. Join today at www.michaeljfox.org/podcast-PPMI to contribute to new discoveries and better measures of disease. PPMI especially needs people recently diagnosed with Parkinson’s or with certain risk factors such as smell loss or acting out dreams.
Anyone over the age of 18 in the United States can join through its online platform. Outside the U.S.? View a list of international recruiting sites at www.michaeljfox.org/ppmi-recruiting-sites.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 20 Jul 2022 - 27min - 211 - From Low Blood Pressure to Bladder Problems: A Look at Lesser-Known Parkinson’s Symptoms (Webinar)
Parkinson’s can affect the automatic and involuntary functions our bodies perform, like heartbeat and digestion. In this episode, experts discuss common but lesser-known Parkinson’s symptoms — including bladder problems, constipation, low blood pressure and sweating — and what you can do to treat them.
Recently diagnosed with Parkinson’s? You can play a critical role in the Parkinson’s Progression Markers Initiative (PPMI) study. Connect with the PPMI team at michaeljfox.org/podcast-ppmi-sites
The online part of PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 29 Jun 2022 - 1h 00min - 210 - A Special Conversation in Honor of Father’s Day: Adult Children Reflect on Having a Father with Parkinson’s
In honor of Father’s Day, The Michael J. Fox Foundation (MJFF) is sharing a special podcast episode between three adult children who discuss how they each have navigated having a father with Parkinson’s disease.
This Father’s Day and beyond, MJFF celebrates the experiences of patients, loved ones, researchers, advocates and supporters — speeding progress toward a cure. The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative (PPMI), is enrolling parents, brothers and sisters, and children (over age 60) of people with Parkinson’s. PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 15 Jun 2022 - 31min - 209 - What's in Your DNA? Understanding Parkinson's Genetics (Webinar)
What is the science behind genetic inheritance that increases the chance of getting Parkinson’s disease (PD) later in life? In this episode, experts explain what genetic mutations are, those that are mostly seen in people with PD and the benefits of genetic testing.
Join the study that could change everything at michaeljfox.org/podcast-ppmi.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 25 May 2022 - 58min - 208 - Your Elected Officials, Your Voice: Coming Together to Speed a Cure
Did you know the government plays an important role in helping find a cure for Parkinson’s, and in caring for those living with the disease? In this episode, Michael J. Fox Foundation policy experts and grassroots advocates discuss the importance of telling your story and building relationships with elected officials who represent you in the halls of power across the United States.
You can help lawmakers understand what matters to people with Parkinson’s. Join our policy network today at michaeljfox.org/advocacy
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. Apple.co/3p02Jw0Wed, 18 May 2022 - 37min - 207 - Testing, Testing – How Doctors and Scientists Detect Parkinson’s
How is Parkinson’s diagnosed? Tracked? Importantly, predicted? In the second episode of our “Parkinson’s Science POV” podcast series, MJFF Chief Scientific Officers discuss progress toward better tests for Parkinson’s disease, including a recent report of a brain scan of a key Parkinson’s protein. They discuss imaging, fluid measures and wearable devices and how these objective tools could speed new treatments and improve care.
Much of this work and findings stem from our landmark Parkinson’s Progression Markers Initiative (PPMI) study. Join today at https://michaeljfox.org/podcast-PPMI to contribute to new discoveries and better measures of disease. PPMI especially needs people recently diagnosed with Parkinson’s or with certain risk factors such as a relative with the disease, smell loss or acting out dreams. Anyone over the age of 18 in the United States can join through its online platform. Outside the U.S.? View a list of international recruiting sites at https://www.michaeljfox.org/ppmi-recruiting-sites.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 13 Apr 2022 - 28min - 206 - Parkinson’s Disease and Acting Out Your Dreams (Ask the MD Podcast)
We all dream when we sleep. Some don’t remember dreams. Others clearly recall what they did, how they felt, and who else was there. Still others unintentionally act out their dreams. They may imagine catching a touchdown pass, running from a wild animal, or fending off an enemy. In this episode, our on-staff movement disorder specialist speaks with a couple about their experience with acting out dreams, called REM sleep behavior disorder.
If you or your bed partner act out your dreams — whether you have Parkinson’s or not — you can play a critical role in research. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 30 Mar 2022 - 27min - 205 - Trouble Sleeping? What to Know about Acting Out Dreams and Other Sleep Issues (Webinar Replay)
Some people act out their dreams while asleep. They may punch, kick, yell or even fall out of bed. This sleep problem can be linked to Parkinson’s and other brain diseases. In this episode, experts share why sleep issues happen and what you can do to manage them.
If you or your bed partner have sleep issues — whether you have Parkinson’s or not — you can play a critical role in research. Join the study that's changing everything at michaeljfox.org/podcast-ppmi
More about The Michael J. Fox Foundation Parkinson’s Podcast:
Scientific, medical and patient experts on Parkinson’s discuss practical tips on living well with the disease, current research headlines and more in this award-winning podcast. Get involved today, and access free resources at michaeljfox.org.
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 22 Mar 2023 - 51min - 204 - Parkinson’s Pillow Talk: An Open Conversation on Sex, Sleep and Intimacy
Sexual problems are common in people with Parkinson's, but they can be difficult to talk about. In this episode, experts discuss how Parkinson’s and associated symptoms like sleep changes impact relationships and they share strategies for improving physical and emotional intimacy.
A deeper understanding of Parkinson’s disease biology could improve every available treatment. You can help us achieve that. Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 16 Feb 2022 - 43min - 203 - Diet, Exercise and Other Strategies for Living Well as You Age (Webinar)
People with Parkinson's often ask how diet and exercise fit into their overall care plan. In this episode, experts share what you can do today to eat healthier, exercise, boost brain health and live well as you age.
Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0Wed, 02 Feb 2022 - 58min - 202 - Three Reasons to Be Optimistic about Parkinson’s Therapies for All Stages of Disease
Parkinson’s disease changes: its biology and symptoms start even before the cardinal movement issues and evolve decades after diagnosis. In the first episode of our new podcast series “Parkinson’s Science POV,” MJFF Chief Scientific Officers discuss strategies to stop disease progression at every stage. This episode covers our Foundation’s approach to preventing cognitive changes and falls and to moving toward a world where no one receives a diagnosis of Parkinson’s disease.
You can play a part in research, too. Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 26 Jan 2022 - 27min - 201 - PPMI: The Study that Could Change Everything (Webinar)
Over the past decade, The Michael J. Fox Foundation’s landmark Parkinson’s Progression Markers Initiative has changed how research is done and what scientists know about the brain. Listen as experts discuss the study’s expansion and why now it needs you.
PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmiWed, 29 Dec 2021 - 58min - 200 - Recently Diagnosed with Parkinson’s? Why Your Participation in Research Could Speed a Cure
People early in their disease course are valuable partners in research working toward cures. Experts discuss why this is so important for The Michael J. Fox Foundation’s landmark Parkinson’s Progression Markers Initiative (PPMI) and the critical role you can play in research.
Recently diagnosed with Parkinson’s? Connect with the PPMI team today at michaeljfox.org/podcast-ppmi-sites
PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmi
Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0Wed, 22 Dec 2021 - 28min - 199 - Podcast: Steps Closer to Stopping Parkinson's: 2021 Research Review (Webinar)
Hear expert panelists discuss the latest advancements in Parkinson’s research for our 2021 research review webinar.
Wed, 24 Nov 2021 - 1h 00min - 198 - “Progress on the Path to the Cure” Research Roundtable Recap
In this podcast, we recap the discussion from our Research Roundtable's expert panel of scientists, program leaders and a person with Parkinson’s.
Wed, 17 Nov 2021 - 38min - 197 - Podcast: Too Much or Not Enough: Dyskinesia and "Off" Time in Parkinson's (Webinar)
Hear our panelists discuss common Parkinson’s issues — "off" time and dyskinesia — and how to treat them.
Wed, 13 Oct 2021 - 58min - 196 - Parkinson’s “Off” Time: What It Looks Like, and How to Manage It
What is an “off” period in Parkinson’s? Why does it look so different from person to person? And how do you manage these episodes? Experts discuss steps to work with your doctor and care partners to manage these times when medication is wearing off between doses.
Wed, 22 Sep 2021 - 42min - 195 - Podcast: Do You Love Someone Who Has Parkinson’s? (Webinar)Fri, 10 Sep 2021 - 59min
- 194 - The PD Avengers Podcast Takeover: Meet Global Parkinson’s Organizations and How They Can Help You (Part 2)
Tune in to part two of this podcast takeover as the global advocacy group — the PD Avengers — highlights more Parkinson’s organizations from all over the world. Connect with new groups, learn about their mission and find resources that can support you and your family in your journey with the disease.
Wed, 01 Sep 2021 - 49min - 193 - The PD Avengers Podcast Takeover: Meet Global Parkinson’s Organizations and How They Can Help You (Part 1)
Ever wondered why there are so many Parkinson’s organizations around the world? Join the PD Avengers — a global advocacy group — as they take over MJFF’s podcast to understand what sets each organization apart, and how you can get involved today.
Wed, 25 Aug 2021 - 40min - 192 - Podcast: What Comes Next? Living with Parkinson’s Years after Diagnosis (Webinar)
A brief summary of this episode
Mentioned in this episode:
This Giving Tuesday, December 3, you can help us sustain and grow the momentum in Parkinson’s research. All donations will be matched up to $4 million, which means your impact will be doubled. Visit michaeljfox.org/match2024 to help us accelerate research and be part of the cure.
Wed, 21 Jul 2021 - 1h 00min - 191 - Podcast: Deep Brain Stimulation: Is It Right for Me or My Loved One? (Webinar)
Hear expert panelists discuss who should consider deep brain stimulation, a surgical procedure for Parkinson’s.
Wed, 23 Jun 2021 - 1h 01min - 190 - Will You Be My Buddy? Finding Mentors, Friends and Parkinson's Support
Learn about how you can join the Foundation’s new online community — the Parkinson’s Buddy Network — to build meaningful connections with other people and families navigating the disease.
Wed, 16 Jun 2021 - 33min - 189 - Podcast: You’re Not Alone: Tips for Building Connections in the Parkinson’s Community (Webinar)
Hear expert panelists offer ways to manage isolation and loneliness and tips for creating meaningful community connections.
Wed, 26 May 2021 - 1h 00min - 188 - Podcast: Volunteering for Parkinson’s Research: What to Know and Expect (Webinar)Wed, 28 Apr 2021 - 58min
- 187 - Myths about Levodopa (Ask the MD Podcast)
Hear from our on-staff movement disorder specialist about the latest in Parkinson’s care and research.
Wed, 31 Mar 2021 - 06min - 186 - Podcast: Brain Boost: A Conversation on Thinking, Memory and Parkinson’s (Webinar)Wed, 24 Mar 2021 - 1h 01min
- 185 - Podcast: New to Parkinson’s? Steps to Take Today (Webinar)Wed, 24 Feb 2021 - 1h 02min
- 184 - Experts Discuss: Thinking and Memory, Parkinson's and a Pandemic
Our experts share information, strategies and tips for living with or caring for someone with mild thinking and memory changes.
Wed, 17 Feb 2021 - 38min - 183 - Thinking about Cognitive Changes in Parkinson’s (Ask the MD Podcast)
Hear from our on-staff movement disorder specialist about the latest in Parkinson’s care and research.
Wed, 27 Jan 2021 - 07min - 182 - Podcast: Night Fight with Parkinson’s: Acting Out Dreams, Insomnia and Other Sleep Issues (Webinar)
Hear our expert panelists offer practical tips and strategies for managing sleep issues in Parkinson’s disease.
Wed, 27 Jan 2021 - 58min - 181 - Milestones and Momentum in Parkinson’s Research (Part 2)
Listen to part two of our conversation reviewing research highlights from the 20-year history of The Michael J. Fox Foundation. And learn about the next chapter the Foundation is just beginning to write.
Wed, 20 Jan 2021 - 30min - 180 - Podcast: Calling All Care Partners: Managing Disease and Burnout in 2020 (Webinar)Tue, 22 Dec 2020 - 1h 01min
- 179 - Milestones and Momentum in Parkinson’s Research (Part 1)
Tune in and walk down memory lane as Foundation leaders reflects on 20 years of milestones and momentum in Parkinson’s research.
Wed, 09 Dec 2020 - 36min - 178 - Podcast: What's Next for Parkinson's: Big Trials, New Treatments and Steps toward Prevention (Webinar)
Our panelists share the momentum happening in Parkinson’s research and what’s on the horizon in 2021.
Wed, 25 Nov 2020 - 1h 00min - 177 - Visiting Loved Ones Who Have Parkinson’s during the Pandemic (Ask the MD Podcast)
Hear from our on-staff movement disorder specialist about the latest in Parkinson’s care and research.
Mon, 23 Nov 2020 - 04min - 176 - Coming Soon (Part 2): Previewing the Foundation’s Virtual Offerings for You and Your Family
Listen to the second part of our fall preview as Foundation staff recap recent events and look forward to what activities and offerings are right around the corner.
Wed, 28 Oct 2020 - 21min - 175 - Podcast: What to Watch This Election Season: A Roll Call of Parkinson’s Policy Priorities (Webinar)
This election season, we review what’s on the ballot and how these decisions impact the Parkinson’s community.
Wed, 21 Oct 2020 - 1h 01min - 174 - Podcast: Pursuing a Game-changing Brain Scan for Parkinson's (Ask the PhD Video)Wed, 14 Oct 2020 - 05min
- 173 - In Conversation with MJFF Board Member Jeff Keefer — “Off” Time, New PD Drugs and Research (Ask the MD Podcast)
Hear from our on-staff movement disorder specialist and her guest, MJFF Board Member Jeff Keefer, diagnosed with Parkinson’s in 2007, about PD care and research.
Wed, 23 Sep 2020 - 12min - 172 - Podcast: Is Parkinson’s Inherited? (Webinar)
Listen to our panelists discuss what we know about Parkinson’s genetics and how genetic discoveries may lead to new treatments to stop or prevent disease.
Wed, 23 Sep 2020 - 59min - 171 - Podcast: New Technologies to Treat Parkinson’s (Ask the PhD Video)
Michael J. Fox Foundation staff discuss devices in testing to treat gait freezing and swallowing problems.
Wed, 23 Sep 2020 - 07min - 170 - Coming Soon (Part 1): Previewing the Foundation’s Virtual Offerings for You and Your Family
In this episode of The Michael J. Fox Foundation Parkinson's Podcast, we roll out the “orange carpet” so to speak and give you a first look at the virtual activities, events and new resources the Foundation is putting together for the fall.
A virtual run/walk. A fireside chat with Michael J. Fox. And much, much more. Listen as our panelists give you an insider update on what’s coming down the pike and how you and your family can take part. Everyone here at the Foundation looks forward to connecting with the community this fall. Visit michaeljfox.org/here to learn more.
Rather listen on-the-go? Subscribe to our Michael J. Fox Foundation Parkinson's Podcast on iTunes or through any podcast app on your smartphone or tablet. And if you enjoyed what you heard, share it with a friend or leave a review on iTunes. It helps listeners like you find and support our mission.
Expert Panelists:
Host and person with Parkinson's Larry Gifford leads a discussion with:
Rachel Dolhun, MD, vice president of medical communications at MJFF and a board-certified movement disorder specialist
Holly Teichholtz, chief marketing officer at MJFFWed, 16 Sep 2020 - 28min - 169 - Exercise and Parkinson’s (Ask the MD Podcast)
Hear from our on-staff movement disorder specialist about the latest in Parkinson’s care and research.
Wed, 02 Sep 2020 - 05min - 168 - Podcast: Environment's Role in Parkinson’s Disease (Webinar)
Listen to our panelists discuss how environmental factors may lead to Parkinson’s and policies to limit those exposures.
Tue, 25 Aug 2020 - 58min - 167 - Inclusivity in Parkinson's Research and Care: Why It Matters in Speeding a Cure
In this episode of The Michael J. Fox Foundation Parkinson's Podcast, we explore the intersection of race and Parkinson’s in both the lived experience of obtaining care for the disease and how that translates to research.
Listen as our panelists have a candid conversation about the value of inclusivity to advance the field’s understanding of the disease and ultimately, more scientific breakthroughs. And learn about how the Foundation is working today to break down barriers to recruit and retain underrepresented communities to participate in research.
Rather listen on-the-go? Subscribe to our Michael J. Fox Foundation Parkinson's Podcast on iTunes or through any podcast app on your smartphone or tablet. And if you enjoyed what you heard, share it with a friend or leave a review on iTunes. It helps listeners like you find and support our mission.
EXPERT PANELISTS
Host and person with Parkinson’s Larry Gifford leads a discussion with:
Jonathan Jackson, PhD, founding director of Community Access, Recruitment, and Engagement (CARE) Research Center at Massachusetts General Hospital and principal investigator of the Fostering Inclusivity in Research Engagement for Underrepresented Populations in Parkinson’s Disease (FIRE-UP PD)
Bernadette Siddiqi, Associate Director of Research Partnerships at MJFF
María L. De León, MD, movement disorder specialist, MJFF Patient Council member and policy advocate
View a transcript of this podcast.
EXTRA READING:
Share Your Story -- The Michael J. Fox Foundation is seeking to grow its community by sharing diverse experiences and perspectives from all who are touched by Parkinson’s disease. If interested, please email your story to shareyourstory@michaeljfox.org along with the best contact information to reach you. We may share your story in future communications.
Get Involved in Research -- Learn more about Parkinson’s clinical research, who can participate and what types of studies are available. Download MJFF’s free guide to Navigating Clinical Trials, which is available in several languages, including Spanish.Wed, 19 Aug 2020 - 45min - 166 - Why Your Advocacy Is Key to Advancing Parkinson's Priorities
In this episode of The Michael J. Fox Foundation Parkinson's Podcast, we discuss the importance of voicing your Parkinson’s priorities on Capitol Hill and how that might look different during a pandemic. Stepping into his new role as host of the podcast, Foundation Patient Council member Larry Gifford leads a conversation with Ted Thompson, JD, Senior Vice President of Public Policy at MJFF, and Israel Robledo, MJFF Patient Council member and policy advocate, about:
Why what happens in Washington, D.C. matters to people with Parkinson’s
Why grassroots advocacy is important and how members of Congress need to hear from constituents
How you can get involved today to advocate for COVID-19 related telemedicine and mental health policy asks that could impact our community
Interested in Parkinson’s advocacy? We need your help to take action. Sign up here.Wed, 29 Jul 2020 - 36min - 165 - Podcast: The Pandemic and Parkinson’s: COVID-19 Impact on Disease, Care and Community (Webinar)
Listen to our panelists discuss results from our Fox Insight survey on the coronavirus and Parkinson's disease.
Wed, 22 Jul 2020 - 1h 02min - 164 - Six Tips for Your First Year with Parkinson’s (and Beyond!) (Ask the MD Podcast)
Hear from our on-staff movement disorder specialist about the latest in Parkinson’s care and research.
Tue, 30 Jun 2020 - 05min - 163 - Podcast: Moving with Mood Changes in Parkinson’s: A Look at Depression and Anxiety in PD (Webinar)Wed, 24 Jun 2020 - 1h 00min
- 162 - COVID-19 Limited Series: Keeping Connected during the Pandemic When You Have Parkinson’s
Larry Gifford and guests explore ways to stay connected and ease anxiety while living with Parkinson’s in a time of uncertainty.
Wed, 17 Jun 2020 - 33min - 161 - COVID-19 Limited Series: Finding Positivity with Parkinson’s in a Pandemic
Larry Gifford and guests break down the importance of keeping a healthy mind and body after a Parkinson’s diagnosis and especially during COVID-19.
Wed, 03 Jun 2020 - 38min - 160 - COVID-19 Limited Series: The Pandemic and Parkinson’s ResearchWed, 20 May 2020 - 30min
- 159 - COVID-19 Limited Series: The Pandemic and Your Parkinson’s Care
In our first episode, we dive into practical tips for managing your Parkinson’s during COVID-19. Michael J. Fox Foundation Patient Council member Larry Gifford leads a conversation with Rachel Dolhun, MD, a board-certified movement disorder specialist and Vice President of Medical Communications at MJFF, and, Katie Amodeo, a movement disorder specialist at the University of Rochester and a graduate of the Edmond J. Safra Fellowship in Movement Disorders, about:
Getting the most out of telemedicine
The impact of social distancing on those who need in-home care
DBS care
Managing stress and anxiety
Rather listen on-the-go? Subscribe to our Michael J. Fox Foundation Parkinson's Podcast on iTunes or through any podcast app on your smartphone or tablet.Wed, 06 May 2020 - 30min - 158 - Podcast: Living in the Moment when the Moment Is Unprecedented (Webinar)Wed, 22 Apr 2020 - 1h 01min
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