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The Joel Nelson Podcast

The Joel Nelson Podcast

Joel Nelson

Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality. Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.

56 - Advocating for Change with Dr Simon Stones
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  • 56 - Advocating for Change with Dr Simon Stones

    Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate who is making his first appearance on the Chronic Pain Talk Show. In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in research, the power of advocacy, and the impact of shared decision-making. Key topics covered in this episode: Simon's personal experience with juvenile arthritisThe role of patient advocacy in healthcareThe importance of shared decision-making between patients and healthcare providersThe future of patient involvement in research Don't miss this inspiring conversation with Dr Simon Stones. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow our GUEST: Instagram: https://instagram.com/simonrstonesTwitter/X: https://twitter.com/simonrstones LinkedIn: https://www.linkedin.com/in/simonstones  Follow the HOST:Instagram: https://instagram.com/joelvsarthritisFacebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis  Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

    Mon, 11 Nov 2024 - 1h 00min
  • 55 - Staying Active with Psoriatic Disease

    Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.  In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy sports despite the challenges of the disease. Little did we know that this conversation would lead to Craig joining Joel in founding Psoriatic Disease UK, a new patient-led charity in England and Wales that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and associated comorbidities. Proving that conversations really do change lives. Find out more here: https://psor.org. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray

    Mon, 28 Oct 2024 - 45min
  • 53 - Patient and Public Involvement in Research (QUICK and iPREPARE Studies)

    On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us. Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes. We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it. These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s). If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow our GUEST: Twitter/X: https://x.com/MartjStevens  Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray

    Mon, 14 Oct 2024 - 48min
  • 52 - Gaming and Chronic Illness with ArchaeoPlays | Creating Content with a Chronic Illness | Part 2

    In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer. Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain. In part two, we dive into why Heather plays games like Minecraft to distract themself and cope with the realities of living with multiple chronic illnesses and how they put their unique twist on it by linking it to their love of history. Listen to hear a novel and alternative way to manage your pain. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplaysTwitch: https://www.twitch.tv/archaeoplaysInstagram: https://www.instagram.com/archaeoplays/ Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX.All Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray

    Tue, 10 Sep 2024 - 27min
  • 51 - Gaming and Chronic Illness with ArchaeoPlays | Heather’s Story | Part 1

    In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer. Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain. In two episodes recorded in front of a live audience on the Chronic Pain Club Talk Show, Heather first shares with us their story of chronic illness before, in part two, we dive into why they play games like Minecraft to distract and cope with the realities of living with these, and how they put their unique twist on it by linking it to their love of history. Check out this episode for our usual lived experience story, but come back for Part 2 to hear a novel and alternative way to manage your pain. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplaysTwitch: https://www.twitch.tv/archaeoplaysInstagram: https://www.instagram.com/archaeoplays/ Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray

    Fri, 06 Sep 2024 - 53min
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