Long Covid Podcast

What if you could harness the power of oxygen to heal the brain? Uncover the potential of hyperbaric oxygen therapy (HBOT) with Dr. Amir Haddany, a leading neurosurgeon and hyperbaric medicine expert. Dr. Haddany takes us through his research since 2008, sharing how HBOT is transforming treatment for neurological conditions like traumatic brain injuries and long COVID. Through imaging techniques such as MRI, we explore the effects of COVID-19 on critical brain areas & how HBOT might offer...

Ever wondered how the traits of ADHD intersect with perfectionism & chronic illness? Jenny Adams returns to offer insights into the intricate dance between trauma, perfectionism, & health challenges. We unravel how ADHD manifests uniquely in women & discuss the crucial need to recognize these traits to better support those managing chronic illnesses. Jenny's story is not just one of struggle but also of hope & inspiration for those seeking a path to recovery.Exploring the conn...

What if a gentle touch could ignite your body's natural healing abilities? Join us as we sit down with Dr. Lydia Knutson, a pioneer in chiropractic care, to uncover the secrets of her Axial Stability Method (ASM) which marries low-force chiropractic techniques with Eastern energy medicine, offering new hope to those suffering from long COVID and other complex conditions, with over 150 long COVID patients benefiting from her method.We explores the profound connection between the nervous and im...

Could recognizing stress, perfectionism, and a relentless work ethic have unknowingly contributed to my journey with Long Covid? This episode, inspired by a listener's question, takes you through my personal exploration of self-blame and recovery, emphasizing the importance of acknowledging lifestyle factors that play into our health. We'll uncover the value of therapy in recognizing these patterns and how Maya Angelou's wisdom guided me: "Do the best you can until you know better. Then, when...

Dr. Eleanor Stein's journey is one of resilience and transformation and her story is both personal and powerful. Dr. Stein shares how her experiences have shaped her approach to patient care and education. Her insights into societal myths around illness & recovery offer a refreshing perspective, especially for those navigating the complexities of living with long-term health challenges.We shine a light on the essence of self-management & body awareness. Dr. Stein articulates the impor...

Episode 148 of the Long Covid Podcast is the second in this two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously.In this episode we dive into What does recovery mean?What the illness is trying to tell usBalance in lifeThe 60-80% sticking pointAppreciating small improvement & building confide...

Episode 147 of the Long Covid Podcast is the first of a two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously.In this episode we dive into How is recovery possible when there is no "cure"? Understanding & education and it's role in treating underlying dysfunction rather than symptoms.&nb...

In episode 146 I speak to the fabulous Dr. Becca Kennedy, a family medicine physician, who discusses her approach to treating chronic pain and fatigue using evidence-based neuroscience. She emphasizes the mind-body connection, explaining that many medically unexplained symptoms are due to brain signaling rather than structural damage. Kennedy highlights that 30-50% of primary care visits involve medically unexplained symptoms, including chronic pain, migraines, and irritable bowel syndrome. S...

Episode 145 of the Long Covid Podcast is a chat with Jenny Adams who is here to share her recovery story! We chat through her illness, the things that helped her and the lessons she has learned.We also discuss the work Jenny is doing now, and the links to work with her are below.Free workshop sign up: https://jenny-adams-f409.mykajabi.com/moreenergyHeal Good Monthly Membership sign up (this will be live when doors open 12-19th Sept) : https://jenny-adams-f409.mykajabi.com/heal-good-sales-page...

Episode 144 of the Long Covid Podcast is a chat with Dr Sarah about her recovery from Long Covid. Sarah tells of her experiences with Covid and her route to Long Covid, as well as some of the things she found that helped.Sarah takes us through her "6 pillars of wellness" that she developed to help her recover - these 6 areas which she thinks are important to address in some way.As with all recovery stories, this is one person's experience and not medical advice. Sarah's written resource &...

Unlock the secrets to better sleep and enhanced well-being in our latest episode featuring David Joffe, a leading expert in respiratory and sleep medicine. You'll gain valuable insights into the intricate roles of slow-wave and REM sleep, crucial for both physical restoration and cognitive functions like memory consolidation. David shares his extensive knowledge on how sleep deprivation and stress can wreak havoc on your immune system and metabolic health, drawing direct links to the challeng...

In episode 142 of the Long Covid Podcast, Jackie takes to the mic to explore her thoughts on Some Things, including almost 3 years since she started the podcast, why boundaries and self-care are so important and more. My youtube channel and the "Ask Jaxter" playlist Long Covid Breathing - see what I have created with Vikki and how you can join our courses and work with usMy Insight Timer - relax with meMessage the podcast! - questions will be answered on my youtube channel :) Support the s...

Episode 141 of the Long Covid Podcast is a chat with the fabulous Todd Davenport - physio & exercise scientist specialing in Long Covid, MECFS & Post-exertional Malaise. We take a dive into PEM, some of the science behind it and some things that can help avoid & mitigate it.Some useful links: Bateman Horne crash care planWorkwell Foundation Links:"I Have ME/CFS or Long Covid What Do I Do Now?"PEM Timecourse Fact SheetHow Do I Obtain Disability Benefits (most useful for US listener...

Episode 140 of the Long Covid Podcast is a chat with Jess Dove London, CEO of the startup "Turnto". Jess tells the story behind Turnto and how it's now helping people with ME/CFS & Long Covid. We talk about the app, it's main features and how it can help.Have you enjoyed the app? Let us know! https://turnto.ai/downloadMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCov...

Episode 139 of the Long Covid Podcast is a chat with Patrick Ussher and Peter Deen about excessive thirst in ME/CFS & Long Covid. We talk about what this is - and how it can be a very serious issue, as well as what brought Patrick & Peter together for the research they are now doing.The Survey mentioned is not quite ready yet - it will be added and publicised when it goes live - also follow www.longcovid.org Peter: website https://www.streasure4health.comhttps://www.linkedin...

Episode 138 of the Long Covid Podcast is a chat with Jules Rogers, who shares how she recovered from Long Covid. We chat through the things that helped - some of which made a little difference, some a lot. As with all recovery stories - this is one person's experience. We wouldn't recommend trying to replicate it, as no two people are the same. But taking ideas & certainly inspiration is absolutely a good idea!Jules website: julesrogerslifecoach.com Social handles jules_rogerslifecoach on...

Episode 137 of the Long Covid Podcast welcomes back Lorrie Rivers to chat about EFT tapping, a technique that she's personally had good results with and now uses with her clients. EFT stands for Emotional Freedom Technique and can be a great way of gently helping us out emotionally, which can be difficult with health challenges such as Long Covid. But as Lorrie shares, it actually can do more than that too. We dive into some of the science behind it, as well as using me as a guinea pig for an...

Episode 136 of the Long Covid Podcast is a continuation of my chat with the fabulous Dr Meg Anderson about movement in Long Covid. In this episode, we talk more about what that movement might actually look like and how to tailor that. The previous episode, where we talk about "getting ready" for movement is definitely worth a listen HERELinks: Meg website: www.risingtidesrecovery.comApplication for group program Energy Expansion Project: https://mailchi.mp/2362788d68fa/energy-expansion-projec...

Episode 135 of the Long Covid Podcast is a chat with the fabulous Dr Meg Anderson about movement in Long Covid. This is part one of our chat where we talk about getting ready for movement, how to know you might be ready and kind of setting the scene. Watch out for part 2 next week, where we talk more about what that movement might actually look like and how to tailor that. Meg website: www.risingtidesrecovery.comApplication for group program Energy Expansion Project: https://mailchi.mp/236278...

Episode 134 of the Long Covid Podcast is a chat with Vicky van der Togh & Dr Jeremy Rossman from Research-Aid Networks. We discuss what the organisation does, what brought Vicky & Jeremy together as well as their recently published hypothesis paper.Research-Aid Networks www.researchaidnetworks.org Pandemic-Aid Networks www.researchaidnetworks.org/pandemic-aid-networks Long Covid hypothesis paper: https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2023....

Episode 133 of the Long Covid Podcast is a chat with A K Davidson, author & poet, who has now recovered from Long Covid. We chat through her experience, how writing because so important as well as helping with recovery, although not always in the way she expected!As always - recovery stories are one person's experience! They can be useful for ideas, but more than anything, giving hope of recovery for anyone who is struggling.Purchase the book: From Waterstones.comFrom Amazon.co.ukE-bookIn...

Episode 132 of the Long Covid Podcast is a chat with the wonderful Hadas Golan & Rosalba Courtney. Hadas and Rosalba have been collaborating on working with people with Long Covid and have recently published a series of case studies detailing their successes. We take a deep dive into my favourite subject - breathing - discussing some of the underlying pathology and how this relates to using breathing as an intervention to help Long Covid, if done correctly.This is the link to the publishe...

Episode 131 of the Long Covid Podcast is a chat with the wonderful Dr Wes Ely, internist & pulmonologist, clinical triallist & also author & Long Covid advocate. We chat through some of his experiences with Long Covid patients as well as the clinical trial of baricitinib for Long Covid which is enrolling very soon.ICUdelirium.org Stat News - "Don't give longhaulers the silent treatment"RVLC - Reverse Long Covid trial on Clinicaltrials.gov RVLC Trial websiteEvery Deep Drawn Breath ...

Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful.Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzkeA blog written on "Health Rising" https://www.healthrising.org/blog/2023/12/07/nicotine-patch-long-covid-chronic-fatigue-fibromyalgia/Message the podcast! - questions will be an...

Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow.Lily's Instagram: https://www.instagram.com/longcoviddietitian/The Energy Expansion Project: https://www.longcoviddietitian.com/ with some resources and a link to the application.Message the podcast! - questions will be answered on my yo...

Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid.We take a deep dive into T-Cells, immunology and the quest for a biomarker!Virax Biolabs Long Covid research at ManchesterMessage the podcast! - questions will be answered on my youtube channel :) For...

Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way.Rachael's Instagram: https://www.instagram.com/rebound.athletic/Rachael's website: www.rebound-athletic.comMessage the podcast! - questions wi...

Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself.Links:Joshua Roman Website"Immunity" ProjectYour Brain on Art by Susan Magsamen & Ivy Ross NBS News Segment featuring Joshua - A blood test for long Covid is possible, a study suggests T...

Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then receive it!This is such an honest conversation - thankyou Peter for being brave and getting in touch, and we hope that this will resonate with others ...

Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways for me was the need to work together. That, and I've basically committed myself to trying Acupuncture now...Elizabeth's website: www.awakenac...

Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest hereEpisode 94 - my recovery storyMessage the podcast! - questions will be answered on my youtube channel :) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self fund...

Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it as much as I did.My previous episode with Louise: Episode 18 with more details about Louise's original study Testimonials:Samantha Berry, 52 yea...

Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones tend to come up most often, and how can we best handle them?Follow Pamela on Facebook & Instagram Website: https://www.pamelarose.co.ukCourses and webinars: http...

Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world!https://www.derby.ac.uk/research/showcase/long-covid-research/Episode #103 with Amy Proal on Viral PersistenceEpisode #36 with Mark when we first spoke, back in early 2022.Message the podcast! - questions will be answered on...

Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@MGB.ORGMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please che...

Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor!Dr Myhill's websiteBooks:- chronic fatigue book- paleoketogenic diet- ecological medicene - Underactive thyroid bookDr Rachel Brown MetPsyMessage the podcast! - questions will be answered on my youtube channel :) For more information a...

Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are not what we wanted or expected.Personal website & info about her coaching business: https://www.leelaobrien.comLeela's wellness & outdoor adventure blog: https://w...

Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients.Claire Taylor TwitterClaire Taylor WebsiteClaire Taylor InstagramMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreath...

Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid.This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take a look at trials and studies happening now - and why they are important.Dysautonomia International Website: http://www.DysautonomiaInternational.org Dysautonomia Internati...

Episode 114 of the Long Covid Podcast is a chat with Sarah about her recovery from Long Covid. Sarah is a yoga teacher who is now teaching yoga classes to help people with Long Covid, as well as running her own podcast focused on recovery stories. We chat through Sarah's experiences, what helped her to recover and what life looks like now.http://www.LearnitLive.com/longhaulyogi - regular Yoga for Long Covid Zoom classes onlineLonghaulyogi.subkit.com - Yoga for Long Covid OnDemand content...

Episode 113 of the Long Covid Podcast is an incredible showcase of creativity inspired by Long Covid. These wonderful talented people have shared so many different varieties of creativity and it was such a joy to witness. Links to all the participants are below - please do check them out - and all the visual elements - paintings, collages, crochet & nail art are on the website creativity page - check this out because it's amazing! Not only does it have this years' participants, but the pr...

Episode 112 of the Long Covid Podcast is my 2023 reflections. A lot of look back on, be grateful for and certainly a lot that I've noticed - about myself and the world! Of course this isn't medical advice - just my own observations. Links mentioned: Episode 94 - my recovery storyLast year's episode - 2022 ReflectionsMore info about Breathing for Long CovidOur Jan courses (info & sign up) - or email longcovidbreathing@gmail.comMessage the podcast! - questions will be answered on ...

Episode 111 of the Long Covid Podcast is a chat with Sophie Reynolds who has recovered from ME/CFS and is now using her experiences to help people through Pilates, which was one of the things that helped her so much. We chat through her experiences as well as what helped, and what she has learned from the experience to take forward into her life now.Sophie's Instagram profilehttps://www.instagram.com/sophiereynoldspilates/My free consultation form:https://docs.google.com/forms/d/e/1FAIp...

Episode 110 of the Long Covid Podcast is a chat with Lisa McCorkell, Gina Assaf & Hannah Davis, co-leads & co-founders of the Patient-Led Research Collaborative. We chat about how Long Covid & the Body Politic Slack community brought them all together, and how the organisation has progressed and flourished from there.Website: patientledresearch.com Nature Review: https://www.nature.com/articles/s41579-022-00846-2- original body politic survey: https://patientresearchcovid19.com/re...

Episode 109 of the Long Covid podcast is a chat with Julie Black about her recovery from Long Covid. We speak through her illness, what she found that helped as well as other observations she has.As with all recovery stories - this is just one person's experience. No two recovery stories are likely to be carbon copies of each other.**transcript now updated - if it's not showing for you, you may need to refresh or re-download**Rachel Witfields recovery blog and resourcesRecovery Norway recover...

Episode 108 of the Long Covid Podcast is a chat with Cardiologists and researchers, Vassilios Vassilou & Vicky Tsampasian. We discuss cardiac-related things they have seen in Long Covid patients as well as their research into risk factors of Long Covid and why this is important.https://journals.plos.org/globalpublichealth/article?id=10.1371/journal.pgph.0001188https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2777978https://link.springer.com/article/10.1007/s11883-020-00880-6&n...

Episode 107 of the Long Covid Podcast is a chat with the fabulous Raelan Agle who has recovered from Chronic Fatigue Syndrome and is passionate about sharing both her own recovery story and those of others. We chat through her own recovery and some of the themes and highlights of people she has spoken to on her channel. This is so full of hope and excitement and was a genuine joy to record.Raelan's YouTube Raelan's InstagramRaelan's book - Finding Freedom: Escaping From the Prison of Chr...

Episode 106 of the Long Covid Podcast is a chat with Dr Taylor Krick from the Washington Wellness Centre and also the host of the "Autoimmune Doc Podcast"We chat through his experiences with patients with autoimmunity both before Covid and since Long Covid came along, as well as some of the patterns he is seeing.www.autoimmunedocpodcast.com @autoimmunedoc on instagram, I think Facebook is the same Message the podcast! - questions will be answered on my youtube channel :) For more i...

Episode 105 of the Long Covid Podcast is a chat with Dr Calum Carson, Senior Research Associate at Lancaster University about the Inclusive Remote and Hybrid Working Study which he is involved in.Participate in the studyProject websitePrevious study The changing workplace: Enabling disability-inclusive hybrid working - Lancaster UniversityMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please ...

Episode 104 of the Long Covid Podcast is a chat with artist, Alison Larkman, about her project "I would be here if I could" which is currently in progress. We chat about the inspiration behind the project, and Alison's experiences with ME which really resonate throughout the project.More information, or participate!www.IWouldbeHereIfICould.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, ple...

Episode 103 of the Long Covid Podcast is a chat with the fabulous Dr Amy Proal, a microbiologist researching viral persistence in Long Covid. We chat through what brought her to this research as well as taking a bit of a deep dive into the topic.Review Paper: https://www.nature.com/articles/s41590-023-01601-2#MOESM1PolyBio Research Foundation recent paper on SARS-CoV-2 reservoir in LongCovid/PASCMessage the podcast! - questions will be answered on my youtube channel :) For more information a...

Episode 102 of the Long Covid Podcast is a chat with Dan Neuffer about his experiences with ME/CFS and how that led him to create the ANS Rewire program. We discuss Dan's hypothesis for post viral fatigue syndrome, and how this relates to Long Covid recovery.Get Dan's free e-bookRequest the free intro lessons for ANS Rewire CFS Unravelled - YouTube CFS Unravelled InstagramMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covi...

Episode 101 of the Long Covid Podcast welcomes back Dr Sally Riggs for a chat about Polyvagal theory and how this relates to Long Covid. We talk through some Polyvagal strategies that can be tried as well as Sally's personal experience.Episode #23 - Sally's previous episodeMore info on doing SSP with SallyUnyte ILS SSP practitioners"how to find an SSP practitioner" YoutubeSally's Website Sally's Facebook group Sally's E-course Sally's YouTubeMessage the podcast! - questions will be answered o...

Episode 100 (yes - 100!!) of the Long Covid Podcast is a chat with the fabulous Michelle Irving, a coach working with people with chronic illness to help them to feel empowered. We talk about her own experiences with chronic conditions and how she is using them to help guide others.This is a wonderful, inspiring discussion, always focusing on what we can do, rather than what we can't. Emotional empowerment mapSarah Marie Ramey (the Lady's Mysterious Illness)Michelle's websiteCareer & Chro...

Episode 99 of the Long Covid Podcast is a chat with the fabulous Viola Sampson, microbiome analyst and certified health coach. Viola has recovered from ME after a long illness and is passionate about helping people with fatigue conditions through her knowledge of the microbiome.This is a fantastic dive into what the microbiome is, and how we might be able to improve our own.Instagram @violasampson_microbiomePodcast with more detail on microbiome changes can be found at: https://www.biomesight...

Episode 98 of the Long Covid Podcast is a chat with Charlotte Hammond who is sharing her recovery story! We chat through her initial illness, symptoms, what she found that helped as well as more useful stuff for those still suffering.Charity providing counselling (UK)Dr SinclairMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt,...

Episode 97 of the Long Covid Podcast is a chat with Dr Harlan Krumholz, Cardiologist, leading research scientist at Yale and also the co-lead of the Paxlovid Trial. We chat around the research into Long Covid at Yale - the Listen Study as well as the Paxlovid Trial which are collaborations with Akiko Iwasaki, as well as the way that these studies are being run - in a decentralised way.More info & sign up for the Listen StudyMore info & how to sign up for the Paxlovid TrialMessage the ...

Episode 96 of the Long Covid Podcast is a chat with Dr Masha Makeeva, Canadian Board-Certified Naturopathic Doctor, educator, and motivational speaker, but also has experience of Long Covid and other chronic conditions. We chat through her own experiences and how her knowledge as a doctor (as well as previous illness) has helped her to move towards recovery. Youtube channel Instagram @dr_masha_makeeva website - www.drmasha.comThe Plant ParadoxMS HBOT link (for UK) Neural Therapy Network...

Episode 95 of the Long Covid Podcast is a chat with the fabulous Élaina Gauthier-Mamaril, Interdisciplinary Research Fellow at the Centre for Biomedicine, Self and Society at the University of Edingurgh. She has experience of disability through ME/CFS and is also presenting part of her research at the Edinburgh Fringe this summer as a show - "Long Covid, Zombies & Crip Prophecies"This is such an interesting discussion about disability in general as well as Élaina's research and how it is ...

Episode 94 of the Long Covid Podcast is a bit special - here I am handing over my hosting duties to my partner, Malky, so he can interview me about my recovery. Yes - my recovery - from Long Covid.Although it's impossible to cover everything (I've already thought of loads of things I wanted to say but forgot), hopefully we got most of the important stuff.As always - if you have questions - please do get in touch, as there's always the possibility of a follow-up (with any guest). And if I get ...

Episode 93 of the Long Covid Podcast is a chat with Dr Viki Male who is doing research into Long Covid and menstruation, in collaboration with the app Visible, as well as the Wilco study. We chat about the 2 different studies she is involved in, and how they will hopefully bring together a load of data to give some answers.This study is a really cool example of a collaboration between people with Long Covid and researchers, so it really demonstrates that people's voices are being heard.If you...

Epsiode 92 of the Long Covid Podcast is the second half of my question & answer session with Dr Groysman - the link to the first half is below, if you've not already heard it.If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch.Dr Groysman episode on Stellate Ganglion BlockPart 1 of this interviewMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please ch...

Epsiode 91 of the Long Covid Podcast is a question & answer session with Dr Groysman, who you will have heard in previous episode talking about the Stellate Ganglion Block.This is part 1 of this session as it ran quite long - the link to the second half is below (or wherever you get your podcasts!)If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch.Dr Groysman episode on Stellate Ganglion BlockPart 2 of this interviewMessage the podcast! - questions w...

Episode 90 of the Long Covid Podcast is a chat with Dr. James Jackson, who is a psychologist specializing in neuro psychology and rehabilitation, and an internationally renowned expert on the effects of illness, including long COVID, on cognitive and mental health functioning.This was a wonderful discussion with so much help as well as hope!Purchase "Clearing the Fog - a practical guide to surviving and thriving with Long Covid"www.jamescjackson.comBrain HQMessage the podcast! - questions wil...

Episode 89 of the Long Covid Podcast is a chat with Gina Short about her recovery from Long Covid. We chat through the things that helped as well as what she has learned from her experience.Suzy Bolt Rest Repair programThe Fern ProgrammeStasis BreathingBooks mentioned: The Way Out, Cured, Breaking FreeMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (musi...

Episode 88 of the Long Covid Podcast is a chat with Dr Tania Dempsey, expert in chronic disease and a master of finding the root cause of "mystery illnesses" We talk about her experiences both before Covid, and since with Long Covid patients.www.drtaniadempsey.comhttps://aimcenterpm.com/ https://aimcenterpm.com/six-surprising-places-bacteria-are-growing-in-your-home/Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing...

Episode 87 of the Long Covid Podcast is a chat with Dr Mark Harper, consultant anesthetist, researcher and cold water enthusiast! We chat about cold water and all it's amazing benefits on both mind & body, as well as how you can do it safely.Chill (swims around the UK) Mark Harper websiteMental Health Swims Buy Mark's book "Chill" https://blackwells.co.uk/bookshop/product/Chill-by-Mark-Harper/9781797213767; https://www.waterstones.com/book/chill/mark-harper/9781797213767Message the podca...

Episode 86 of the Long Covid Podcast is a chat with Harry Leeming, CEO & co-founder of Visible Health. We chat through the reasons behind Visible as well as more practically what it does & how it can benefit you!**We are aware of the latest research by PLRC, just released, on Long Covid & Menstruation which hadn't yet been published at the date of recording - so the statement that there is no data on this isn't quite true, although I'd argue that it's still under-studied.**Visible...

Episode 85 of the Long Covid Podcast is a chat with the fabulous Fiona Agombar, a yoga therapist, author and rest activist who specializes in teaching live online yoga for all fatigue conditions, including MECFS, exhaustion, burnout from stress, and of course, now long COVID.Restful Yoga for Fatigue with Fiona - an uplifting community page for those interested in yoga. Fiona's website - more about her classes and books and her story.Yoga Therapy for Stress, Burnout and Chronic Fatigue Sy...

Episode 84 of the Long Covid Podcast is a chat with Caroline Pover and puts a bit of a spotlight on the issue of vaccine injuries. Although we don't know the full story, the vax injured seem to be close cousins of Long Covid and an issue all too often swept under the carpet.Caroline tells her story and shares a few things that have helped her.Caroline Pover websiteUKCV Family website"Get well fast now" protocol"Safe & Effective" film Caroline speaking at the "Better Way" conference"M...

Episode 83 of the Long Covid Podcast is a chat with Ryan Prior, journalist, producer, author & advocate. Ryan chats about his experiences with ME and how he saw the wave of Long Covid coming long before many of us did. We chat about his thoughts on many aspects of Long Covid & chronic illness in general, as well as his new book - The Long Haul.Buy "The Long Haul"Ryan's websiteMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Co...

Episode 82 of the Long Covid Podcast is a chat with the fabulous Dr Jay T Wiles, who is a Clinical health physiologist specialising in sports performance and holistic & integrative health. He is also board certified in biofeedback and heart rate variability biofeedback which is what we're going to be covering in this episode. We chat about what HRV actually is - and then how to apply it to daily lives, especially in the context of Long Covid & chronic illness. I learned so much from s...

Episode 81 of the Long Covid Podcast is a chat with Dr Liza DiLeo Thomas who is a Patient Experience Professional and also has Long Covid. Liza has also worked as an emergency medicine physician in New Orleans. We chat about how she has learned more about her role through experiencing an "invisible disability" such as Long Covid; seeing things through the eyes of a patient as well as a medical professional, as well as what empathy really means.Message the podcast! - questions will ...

Episode 80 of the Long Covid Podcast is a chat with Dr Anjali Agarwal, consultant Physiotherpist, lifestyle consultant , EDS Hypermobility-specialised Physio, Advocacy Co-Director of long covid physio & women's health specialist. We dig deep into the relationship between EDS, Long Covid, PoTS & MCAS - it's fascinating to hear how all these things can fit together - as well as what we can do to help.Anjali's websiteKnee painLong Covid Physio BoardDr Anjali Healthy Tales Podcast episode...

Episode 79 of the Long Covid Podcast is a chat with Michael Towers, creator of Chronic Fatigue Superhero - a series of comics depicting life with a chronic illness. We discuss the character as well as the immense amount of work that goes into making a book when you have a chronic illness.Follow Michael on InstagramBuy the bookMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out Lon...

Episode 78 of the Long Covid Podcast is a chat with Dr Lucy Gahan, Long-hauler, Clinical Psychologist and a published author! We discuss what she has learned from her experiences and how this led her to write her book "Breaking Free from Long Covid - reclaiming life and the things that matter" - I think the title speaks for itself!Lucy's book "Breaking Free from Long Covid"Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathi...

Episode 77 of the Long Covid Podcast is a chat with the wonderful Suzy Bolt about the fears around reinfection, or indeed infection of any kind. This is something that is a huge concern for me, and I know for many others. Suzy gives loads of really good advice - and her own experiences - around this, so I hope you're able to take as much away from it as I did. Links:360MindBodySoulThe Fern ProgrammeYouTube ChannelWorkshop on reinfectionMessage the podcast! - questions will be answered on my y...

Episode 76 of the Long Covid Podcast is a chat with Dr Robert Groysman about the work he has been doing treating Long Covid with the Stellate Ganglion Block. We discuss what the block is and how it can be really successful in helping people. Facebook Treatment GroupYouTube ChannelDr Groysman's websiteDr Groysman in NewsMaxDr Groysman in a Houston MagazineMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses &a...

Episode 75 of the Long Covid Podcast is Jackie's reflections on 3 years of Long Covid, and why there is cause for positivity. Despite the many mistakes, this is reflections on a search for answers and "hacking" your way through to see improvement.This is not medical advice!Message the podcast! - questions will be answered on my youtube channel :) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If ...

Episode 74 of the Long Covid Podcast is a chat with Dr Walter Koroshetz, Director of the National Institute of Neurological Disorders & Stroke, part of the National Institute of Health in the US. We chat through the RECOVER Initiative which is a huge study looking into all aspects of Long Covid, and also talk a little about ME/CFS research done by Dr Avindra Nath.Links:https://www.ninds.nih.gov/about-ninds/who-we-are/directors-cornerTranscript available under the "transcript" tab HERE-&nb...

In episode 73 of the Long Covid Podcast I chat with the fabulous Dr William Li, who is a Physician, Scientist, president and medical director of the Angiogenesis Foundation, and bestselling author of “Eat to Beat Your Diet: Burn Fat, Heal Your Metabolism, and Live Longer”. Dr. Li is leading research into COVID-19 and Long Covid which is what brings him to the Long Covid Podcast!We chat through some of his findings and theories, as well as what can be done to help. I learned so much from this ...

Episode 72 of the Long Covid Podcast is a chat with Professor Amitava Banerjee about the STIMULATE-ICP study which he is co-lead of. We chat a load about the different "arms" of the study itself, how it has been developed and the role of patient involvement. We also chat about how you might be able to get involved in different parts of the study.Link to website: https://stimulate-icp.org/Message the podcast! - questions will be answered on my youtube channel :) For more information about Lon...

Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition.This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the links below.Tinnitus UK Your Covid Recovery tinnitus information Message the podcast! - questions wil...

Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share.Useful links below:What’s the Root Cause of My Illness? Lorrie Rivers - Living from InspirationJoin Face...

Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more. Purchase "The Long Covid Survival Guide"Long COVID Survival Guide book exchangeThe book's page...

Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms.This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions can affect one another as well as what can be done.I hope you enjoy as much as I did.Center for C...

Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it.If you are interested in signing up (or would just like some more information about the study) please go to DecodeME.org.ukScience fo...

Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conversation - I hope you enjoy it as much as I did!Dysautonomia International WebsiteDysautonomiainternational.o...

Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work.If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below.Long Covid Choir - "When we sing together" by Vicky Jacobs (Sound engineer Nick Westoby) Julia's plants & artwork - see the Long C...

Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice.I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing?My Vedicinals blogFood Intolerance testEpisode 40 - Dr Boon LimEpisode 49 - Adrian & Leanne (wild swimming)Safe & Sound Protocol (SSP)Message t...

Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them! Useful links below.www.bagnellbraincenter.comhttps://www.bagnellbraincenter.com/online-forms.html"Persistent Brainstem Dysfunction in Long Covid - a Hypothesis" Message the podcast! - questions will be answered on my youtube channel :) ...

Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talkMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & ...

Episode 61 of the Long Covid Podcast is a chat with Rosie & Colin Pidgeon. Rosie has had Long Covid for a little over a year after catching it at school. Rosie talks through her symptoms & what has helped; and Colin, her wonderfully supportive Dad, describes how he's adjusted his & his family's life to help support Rosie. Rosie is also a really talented artist, and is curating an exhibition at the start of December, in aid of Long Covid Kids. Links below (& these will ge...

Episode 60 of the Long Covid Podcast is a chat with Reema Ahmad who has Long Covid following a 2020 infection but has had a difficult route to diagnosis. We chat through a lot of her experiences and what she has learned from them, things that have helped her and lessons learned.This is a really frank and honest discussion and will hopefully make a lot of people feel validated and heard.Reema's book - Un-ParentingMessage the podcast! - questions will be answered on my youtube channel :) For m...

Episode 59 of the Long Covid Podcast is a chat with the fabulous Vikki Jones, personal trainer, dietitian, wellness coach and former international athlete. Vikki is suffering with Long Covid and has developed a passion for breathing and helping others going through the "longhaul experience"We chat through all sorts of things from her own experiences, the collective trauma we all suffer as well as some practical advice for things we can do NOW to improve our breathing. Patrick McKeown - The Br...

Episode 58 of the Long Covid Podcast is a chat with Fiona Jones, Co-lead of the LISTEN trial which is funded by the NIHR and is currently recruiting in parts of England & Wales.We chat about the 2 parts of the trial, how it's been set up and the benefit of their patient involvement both for the researchers & the the patients themselves.Home (listentrial.co.uk)What do people with long Covid think of LISTEN? (listentrial.co.uk)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Episode 57 of the Long Covid Podcast is a chat with Dr Sanjay Gupta, a doctor who has been specialising in the treatment of PoTS since before Long Covid. We chat about the influx of PoTS patients since Covid began, how he got into treating these patients as well as what his treatment recommendations would be (some of which can be done from home ourselves).Youtube channel PoTS Specialist website (lots of resources & some discount codes) Dr Sanjay Gupta website York Cardiology web...

Episode 56 of the Long Covid Podcast is a chat with Johanna Rayl who has recovered from Long Covid. We chat through her initial illness, how this progressed and then how she recovered. We also chat through some things she learned along the way and useful tips with the benefit of hindsight.(Transcript now available - sorry for the delay)CFS UnravelledANS rewireCurable appJohanna's 8 pieces of advice articlePodcast on fear~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Lon...

Episode 55 of the Long Covid Podcast is a chat with Dr Jacob Teitelbaum, Chronic Fatigue Specialist and author of "From Fatigued to Fantastic". We chat about post-viral illness and many of the things that can be done to help people to recover.There's lots of inspiring & useful information here (transcript now live - sorry for the slight delay) Cures A-Z app on Google Play or Apple www.Vitality101.com (finding information) recoveryfactors.comwww.EndFatigue.com (finding sup...