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RealTalk MS

RealTalk MS

Jon Strum

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

464 - Episode 376: Adding Dance, Music, and Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux
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  • 464 - Episode 376: Adding Dance, Music, and Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux

    On this podcast, we tend to talk a lot about new technologies, emerging treatments, the most recently approved disease-modifying therapies, and even some DMTs that haven't yet been approved.   And in the midst of all that cutting-edge research and evolving science, it's easy to lose sight of the fact that expressive therapies like dance and movement therapy, music therapy, and art therapy have all been shown to help promote self-efficacy, emotional well-being, and motor control in people living with MS.

    Dr. Francois Bethoux joins me on today's episode to discuss the benefits of integrating dance and movement therapy, music therapy, and art therapy into your treatment plan to help manage your MS symptoms and enhance your well-being.

    November is National Family Caregivers Month, and we're sharing a neat piece of tech that can not only make life easier for MS caregivers but can make life better for their care recipients, as well. CEO Costin Tuculescu introduces us to his company's new device, OnScreen.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Adding expressive therapies to your MS treatment plan  :22

    OnScreen CEO Costin Tuculescu explains how OnScreen can help people with MS and their caregivers  1:34

    Dr. Francoi Bethoux discusses the benefits of dance therapy, music therapy, and art therapy for people living with MS  17:45

    Share this episode  31:47

    Have you downloaded the free RealTalk MS app?  32:06

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/376

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    OnScreen https://onscreeninc.com

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 376 Guests: Costin Tuculescu and Dr. Francois Bethoux

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    Mon, 11 Nov 2024 - 33min
  • 463 - Episode 375: Managing Teenage MS with Dr. Ann Yeh

    Being a teenager is hard. So, imagine for a moment that in addition to everything else that teenagers have to endure, you're a teenager who's been diagnosed with MS. Your ability to participate in after-school activities or just hang out with your friends is impacted by MS-related fatigue. The typical adolescent anxiety over something someone posted on social media evolves into depression. And cognitive issues begin to make it harder for you in the classroom. This is an unfortunate reality for many adolescents who are living with MS.

    Joining me to discuss how MS affects adolescents and how families can help manage MS is Dr. Ann Yeh. Dr. Yeh is a Professor of Pediatric Neurology at the University of Toronto and the director of the MS and Neuroinflammatory Disorders Program and Fellowship Program at the University of Toronto's Hospital for Sick Children, known as SickKids. 

    We'll also tell you about a new online resource for MS care partners.

    We'll share the results of a study that explored how different symptom management responsibilities impact MS care partners.

    We'll share details of a study that demonstrated positive results in improving MS-related fatigue.

    We'll tell you about the discovery of a plant-based molecule that is showing promise in promoting myelin repair.

    And we're sharing surprising research results that have more than doubled the prevalence of MS in Australia.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Managing Teenage MS  :22

    November is National Family Caregivers Month  1:47

    You're invited to preview MS Care Partner Connection  3:40

    A study reveals the most challenging MS symptoms for care partners to manage  6:33

    Study results show Modafinil and cognitive behavioral therapy are both effective in managing MS fatigue  7:25

    Researchers discover a plant-based molecule that may be effective in promoting myelin repair  9:46

    Prevalence of MS in Australia more than doubled over an 11-year period   12:54

    Dr. Ann Yeh discusses the challenges of MS among adolescents  16:05

    Share this episode  31:15

    Have you downloaded the free RealTalk MS app?  31:36

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/375

    ADD YOUR VOICE TO THE CONVERSATION

    I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    The MS Care Partner Connection https://mscarepartnerconnection.com

    Addressing the Needs of Multiple Sclerosis Caregivers from Diagnosis Onward: The Development of a Comprehensive Online Caregiver Protocol https://meridian.allenpress.com/ijmsc/article/25/6/273/496788/Addressing-the-Needs-of-Multiple-Sclerosis

    STUDY: Symptom Management Among Multiple Sclerosis Care Partners in Canada https://meridian.allenpress.com/ijmsc/article/25/6/281/496792/Symptom-Management-Among-Multiple-Sclerosis-Care

    STUDY: Comparative Effectiveness of Cognitive Behavioural Therapy, Modafinil, and Their Combination for Treating Fatigue in Multiple Sclerosis (COMBO-MS): A Randomised, Statistician-Blinded, Parallel-Arm Trial https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(24)00354-5/abstract

    STUDY: Distinct Chemical Structures Inhibit the CEMIP Hyaluronidase and Promote Oligodendrocyte Progenitor Cell Maturationhttps://www.jbc.org/article/S0021-9258(24)02418-9/fulltext

    STUDY: Significantly Increasing Multiple Sclerosis Prevalence in Australia from 2010 to 2021 https://journals.sagepub.com/doi/10.1177/13524585241265890

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 375 Guest: Dr. Ann Yeh

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    Mon, 04 Nov 2024 - 32min
  • 462 - Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin

    Learning to live with MS is learning to live with loss. For some, those losses may be minor and seem relatively insignificant. For others, those losses can be huge and life-altering. The definition of grief is an emotional response to a significant loss. It's not unusual to grieve over those things in your life that have been lost due to MS. In fact, healthy grieving is a necessary emotional step to moving forward in life.

    Dr. Holly Hendin, a faculty physician and psychiatrist at St. Joseph’s Hospital Medical Group Outpatient Behavioral Health in Phoenix, Arizona, joins me to explore grieving when you live with MS.

    We'll also share the results of a study that show other health conditions can have a negative impact on MS disease activity, like relapses and disability worsening.

    And we're sharing the details of the $4.6 million dollar investment the National MS Society is making in research focused on myelin repair.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Grieving when you're living with MS  :22

    A study shows how other health conditions may cause MS to worsen  2:00

    The National MS Society is investing $4.6 million dollars in research focused on myelin repair  6:21

    Dr. Holly Hendin helps us understand the importance of healthy grieving when you're living with MS  9:39

    Share this episode  35:30

    Have you downloaded the free RealTalk MS app?  35:50

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/374

    ADD YOUR VOICE TO THE CONVERSATION

    I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    STUDY: Comorbidity and Disease Activity in Multiple Sclerosis https://jamanetwork.com/journals/jamaneurology/fullarticle/2823966

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 374 Guest: Dr. Holly Hendin

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    Mon, 28 Oct 2024 - 37min
  • 461 - Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo

    Now that he's had a chance to digest all of the research presented at ECTRIMS, Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research, is back to share the key research presented at the largest MS research conference in the world.

    This episode of RealTalk MS is the perfect follow-up to my initial conversation with Bruce, which occurred just minutes after ECTRIMS ended. (If you missed our conversation, you may want to check out Episode 369 of RealTalk MS.)

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Part 2 of our coverage of ECTRIMS 2024  :22

    Dr. Bruce Bebo shares the key research presented at ECTRIMS  1:06

    Share this episode  26:13

    Have you downloaded the free RealTalk MS app?  26:31

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/373

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    RealTalk MS Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo https://realtalkms.com/369

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 373 Guest: Dr. Bruce Bebo

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    Mon, 21 Oct 2024 - 27min
  • 460 - Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson

    Open enrollment is underway! And if you're one of the 25% of people living with MS who get their coverage through Medicare, there are some major changes coming in 2025. So, it's especially important that you review your prescription drug coverage to make sure you're enrolled in the Medicare Part D plan that's best for you.  

    Sarah Anderson, pharmacist and senior director of clinical resources and programming at the National MS Society, joins me to help us decipher those changes and navigate the sometimes confusing world of health insurance.

    We'll also tell you about a research team that's editing human DNA to promote myelin repair.

    We'll share the results of a study that offers some surprising evidence about the quality of MS care for women in France. 

    We'll explain why a study that shows people with MS are at a higher risk for being diagnosed with cancer may not be as scary as it sounds.

    In my conversation with Dawn Schottlandt, you'll hear the story of In My Running Shoes and learn how people with MS and other disabilities can benefit from their work.

    And we'll give you all the details about artist Elizabeth Jameson's exhibition, An Intimate Journey, which opens in New York on Saturday, October 19th.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Open Enrollment has begun  :22

    Researchers succeed in editing human DNA to promote myelin repair  1:14

    Research reveals women with MS are often undertreated in France  3:38

    Are people with MS more likely to develop cancer?  6:18

    Dawn Schottlandt explains why she founded In My Running Shoes and how you might benefit  9:12

    Elizabeth Jameson's art exhibition, An Intimate Journey, opens in New York on Saturday  16:01

    Sarah Anderson explains the changes to Medicare in 2025  18:04

    Share this episode  27:56

    Have you downloaded the free RealTalk MS app?  28:16

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/372

    ADD YOUR VOICE TO THE CONVERSATION

    I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    STUDY: CRISPR-Edited ES-Derived Oligodendrocyte Progenitor Cells Improve Remyelination in Rodents https://www.nature.com/articles/s41467-024-52444-w

    STUDY: Cancer Risk Among Patients with Multiple Sclerosis https://www.neurology.org/doi/10.1212/WNL.0000000000209885

    In My Running Shoes https://inmyrunninigshoes.org

    Elizabeth Jameson exhibition at the Positive Exposure Gallery https://positiveexposure.org/event/41014

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 372 Guests: Dawn Schottlandt and Sarah Anderson

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    Mon, 14 Oct 2024 - 29min
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